Siblings with Alport Syndrome plead for kidney donors – Nashville-Davidson, Tennessee

Nashville-Davidson, Tennessee 2021-09-20 07:14:26 –

Hendersonville, Tennessee (WTVF) —Brothers who have been fighting a rare kidney disease in Sumner County for years have suffered from kidney failure and are suing kidney donors.

25-year-old Nick Wilson and his sister, 29-year-old Brittany Davy, have Alport Syndrome. It is a rare kidney disease for which there is no cure.

“Alport syndrome is a chronic kidney disease that affects the kidneys. Your body produces large amounts of protein and causes high blood pressure. After that, high blood pressure acts on the kidneys, which leads to renal failure.” increase. Their mother Cindy Wilson has been attending an appointment with her child for years.

“Both my children have renal failure. This is because they have chronic renal failure and their kidneys no longer function on their own. [dialysis] Machines basically keep them alive. “

Nick learned that he had Alport Syndrome at the age of seven and had been managing his symptoms with medication for over a decade until the spring of 2021.

Claire Kopsky

Twenty-five-year-old Nick Wilson has been bruised by dialysis three days a week for four hours at a time because his kidneys are dysfunctional with Alport syndrome.

In May, Nick started dialysis at the center three days a week for four hours at a time.

“I don’t want anyone to experience it because it can be difficult, but I found that doing this dialysis would be of great help to me,” he explained.

His sister Brittany has been on another type of dialysis for over two years.

“I’m doing peritoneal dialysis. It’s completely different,” Brittany explained. “There is a port in the stomach, it’s just hanging. When you connect the machine at night, there are three liquid bags next to the machine. It has the whole process. You need to connect it. , It takes about 40-45 minutes to prepare it and the whole process of setting up everything. Then, when the machine is ready, you need to connect and wear a mask. I got caught in the room No one can be in the room when you are. It just has to be in a very sterile environment, and if I get caught, I just lie down on the bed until I fall asleep. “

She has to be treated 9 hours a day, 7 days a week.


Claire Kopsky

29-year-old Brittany Davie is on dialysis 7 days a week for 9 hours, showing her stomach port because her kidneys have failed due to Alport syndrome.

Brittany has childbirth problems, suffers from vision problems, and is currently wearing hearing aids for hearing loss, which is known to be caused by Alport Syndrome.

Cindy said their family was usually very private after both her children had dialysis, but they felt they needed to speak up.

“At some point, we have to get over it and tell people that we can’t do this,” Cindy explained.

During the summer of 2021, family members and their friends had decals made for their cars to help spread the word.


Claire Kopsky

The Wilsons and their friends are all putting decals on cars looking for someone with a B or O blood type to donate their kidneys.

Nashville drivers may also notice the I-40 digital sign with the faces of Nick and Brittany in September and October.

“”[We] Nick said. “We need to understand that we will get it done. You know, we will get the kidneys someday. Just keep praying and there are people out there who can help us. You need to understand that. “


Claire Kopsky

Wilson’s friends donated time to the I-40 digital sign near downtown Nashville. I hope that selfless people will pass by and donate their kidneys.

“My daughter is that O + positive and she can only have O blood. My son B +, he can have B or O blood,” Cindy explained.

It is a family wish for two kidneys to save the lives of children.

“If you can help someone, please help us. We really need a transplant, both of us do,” Brittany pleaded. “You will save our lives seriously. We don’t want to live forever like this. We don’t want to dialyze forever.”


Claire Kopsky

Brothers, 25-year-old Nick Wilson and 29-year-old Brittany Davie, live with Alport Syndrome in a childhood home with their mother in Hendersonville, Tennessee, in September 2021.

Siblings with Alport Syndrome plead for kidney donors Source link Siblings with Alport Syndrome plead for kidney donors

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