Turkey day racing for research for rare genetic disorder – Denver, Colorado

Denver, Colorado 2021-11-25 17:38:59 –

Denver — Thanksgiving is the most popular day of the year in road racing. Harvesting Hope 5k didn’t choose to hold a race on Turkey Day because of its popularity, but because of its connection to the food of the day.

“Most of us are like a holiday full of discomfort with this huge meal we enjoy. People with Prader-Willi Syndrome literally live their lives without feeling full. And no feeling of fullness. Not just. They feel three times more hungry than most of us feel hungry, “said race director Rachelle Fisher.

Prader-Willi’s disease is a rare hereditary disease with the characteristic symptoms of bulimia, which is its intense and unwavering hunger.

“It’s the whole lifestyle,” said Joan Strickland, explaining how PWS influenced her young daughter Julia.

The Strickland family joined Harvesting Ho Place not only to raise awareness, but also to do something fun on a feast-centric day that Julia couldn’t attend.

“It’s perfect because it’s out of focus on food,” her mom said.

The race also raised funds for research on PWS, especially the treatment of bulimia nervosa.

“We have about six clinical trials, one of which I think is promising, so we feel like we’re getting closer,” Fisher said. “May one day our children and PWS children have a fulfilling life.”

Joanne Strickland talked about what that meant for her daughter.

“If they calm her brain and get research to listen to her body saying,’I’m full,’ she could do more in life,” she said. Said. “That’s all.”

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